Going to school with duchenne muscular

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The organisation has a National office based in Gauteng. The organisation was founded in by Mr and Mrs Newton Walker of Potchefstroom who, at the time, had a son affected with Duchenne Muscular Dystrophy. The foundation was established with the aim of reaching out to other parents and families in a similar situation and to support research into this disease with the ultimate goal of finding a cure.

The foundation has been carrying out this aim for the past thirty eight years. What is Muscular Dystrophy? Muscular Dystrophies are a group of genetic conditions that are characterised by progressive muscle weakness and wasting of the muscles.

There are more than 70 neuromuscular disorders, and in South Africa, affects 1: Sadly there is still no definite cure, however physiotherapy is very important as well as a balanced diet and exercise programmes can assist in living a better life.

The Muscular Dystrophy Foundation of South Africa | NGO Pulse

Orthopaedic devices can alleviate some of the discomfort experienced. In severe cases medication Going to school with duchenne muscular surgery may help. There are currently many research projects in South Africa and world-wide that are working on a cure for this disease.

Enable people to participate in identifying muscular dystrophy needs and respond appropriately; Develop equal caring and copying services for people affected by muscular dystrophy Support affected people with specialised equipment; Create public awareness on muscular dystrophy issues; Strive for the recognition and protection of the rights of people affected by muscular dystrophy; Support and promote research into the causes and treatment of muscular dystrophy; Generate funds to support and sustain our work; Collaborate and communicate on a national, provincial, international, governmental and non-governmental basis on policy matters relating to all aspects of muscular dystrophy; Assist individuals to form self help and support groups.

MDFSA believes in the ability to fully develop their skills and talents in spite of a handicapped situation; Self-reliance: MDFSA encourages its members to develop self-determination.

The organisation strives to empower them — giving them the tools to make things happen in their own lives as far as possible — as self-reliance brings about a sense of confidence; Human dignity: MDFSA believes in maintaining the dignity of the person and not reducing the person to a disease that is in need of cure.

For this reason, the emotional social and needs of its members are as important as their physical and medical needs; Integration into mainstream society: Disability isolates people, so the MDFSA aims to do everything in its power to prevent this and encourage accessibility and participation; Self-determination: Awareness promotion is an important aspect of the foundation.

September is the Muscular Dystrophy Awareness Month. Research Through newsletters and the website members and the general public are kept informed of all activities and receive research updates, nationally and internationally.

We also support the execution of local research where needed. Participation and assistance with Workplace Employee Wellness programmes; Sharing the benefits of our established health programmes.

These programmes include educational awareness campaigns; Market the donor or sponsor in all our advertisements, branding and events; Sharing the scientific findings and knowledge gained from our research involvement, enabling them to align their health initiatives with these recognised and evidenced base findings; Sharing knowledge with and offer support to the donor or sponsor through our newsletter, and official website; An opportunity to contribute to a just and fair society; A chance to make a difference.

MDFSA is known as the preferred nonprofit leader in muscular dystrophy issues in South Africa with standing of reliability, confidence and commitment to all its members and the communities at large.Epilepsy is the most common serious neurological (affecting the brain) condition, that affects people of all ages, ethnicities and social classes.

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Moms, Regulators, Biotech Startups, and the Battle Over a Potentially Life-Saving Drug Aidan has Duchenne, the deadliest strain of muscular dystrophy.

Helena Bonham Carter - Simple English Wikipedia, the free encyclopedia

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Menu. Welcome – to our centre. Leadership. Our principal investigators – Professors Rita Horvath and Volker Straub lead the John Walton Muscular Dystrophy Research Centre and hold joint appointments between Newcastle University and the NHS.

Along with Emeritus Professor Kate Bushby, they have over publications in the last three years.